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Bridging the gap between healthcare and children with autoimmune brain disorders.

 
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Image credit: Caroline Hernandez

 
 

How we work

Integrity

Autoimmune brain disorders and other related neuropsychiatric disorders are complex and challenge long-held beliefs about mental illness. As our understanding of autoimmune brain disorders evolve, we will search for interdisciplinary solutions; we respect the life work and dedication of each discipline and strive to understand each perspective as we focus on connecting suffering children and families to the resources that improve quality of life.  

Compassion

We believe that when a child's health is impacted, extending compassionate support is vital and improves medical and psychological outcomes.  One of the challenges of autoimmune brain disorders is the impact of brain inflammation on behavior. Disruptive and difficult behaviors are common and affect everyone, especially the immediate family. We want to support families as they manage their own grief, navigate difficulties within the healthcare system, and manage challenging neuropsychiatric symptoms on a daily basis. We will help families learn how to best support their children from the onset of illness to rehabilitation and recovery. We will work to eliminate the stigma associated with neuropsychiatric symptoms by educating our communities and creating a culture of inclusivity, empathy and understanding.

Collaboration

Autoimmune brain disorders affect every part of the body.  Complex illnesses often require specialized interdisciplinary care for effective solutions. We will bring professionals together from medical, psychological, behavioral, educational backgrounds to share knowledge and collaborate in order to effectively address the challenges of autoimmune brain disorders. We will also team up with business leaders, public health officials, mental health organizations, clinical research facilities and other non-profit organizations to provide solutions to the challenges of autoimmune brain disorders and better support children and families. We value unity and strive to foster coordinated, strategic initiatives that are collaborative, and help us to accomplish our shared goals more efficiently.

 

 
 

Neuropsychiatric and neurological disorders are among the leading causes of disability worldwide. 

Silberberg et al |  2015

 

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